Your Baby and Down Syndrome: Answers to Questions You Might Have Brochure
Your Baby and Down Syndrome: Answers to Questions You Might Have is available in English and Spanish in PDF format, free of charge. It provides new parents with a foundation of knowledge for further self-study and talking points for a physician during a diagnostic consultation. The brochure was developed under an AUCD-funded RTOI Grant (through an interagency agreement with CDC, NCBDDD). The goal of the project was to educate primary care providers on Down syndrome.
The most significant lesson learned by the project team is the importance of building relationships while developing materials to be adopted by major organizations. In every successful dissemination effort, there was an influential individual who guided the project team through the organization. The following organizations and associations contributed to the formulation and dissemination of the brochure: AAP; AAFP; ACOG; CA, MA and IA Local DS groups; NAPNAP; NDSC; and NDSS.
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